I haven’t been updating you on Libby’s treatments. And
that’s because there have been no treatments. We are in a holding pattern. We are waiting for Libby’s
blood counts to recover. Apparently, this is normal. The doctors want her
numbers to be at a certain level before we begin the next round of treatment.
They aren’t there. But they’re close. We should be good to go next week.
Meanwhile, I’m so thankful for this little hiatus. During a
typical week we have a myriad of appointments. And it gets to be a lot. This
week we had our usual therapy appointments, our blood count appointment, an
ophthalmologist appointment, a sleep study, and our first aquatic therapy
appointment. Libby and I are somewhat equipped to handle this pace, but poor
little Annie doesn’t quite have the stamina. She goes with us. And let me tell
you. It ain't always pretty. It’s
kind of comical, actually (after the fact). We go to these appointments and
Libby is the one who has to do the work in therapy, she’s the one who has to
get her finger pricked for blood, get her eyes dilated, and sleep in some crazy
contraption. But it’s my Annie who cries. And cries. And cries. I left the
ophthalmologist yesterday and I don’t have a clue what he told me. I was trying
to listen despite Annie’s screaming, but I could only pick up about every third
or fourth word. I pray he didn’t have anything too important to say. And I pray
the prescription he handed me will come with thorough instructions.
(Libby's sleep study. Have you ever!?!?)
On Libby’s treatment days, we are blessed to be able to send
Annie to our amazing friend, Karen. I know Annie prefers this. And, honestly,
so do I. She gets lots of love and
attention. She gets to play. And nap. And I get to not lose my mind. And with
this letup in treatment, Libby and I have even been able to steal a couple of
days just the two of us. It’s been such a treat. This time together, one on
one. We slow down. And we just enjoy each other. I cherish these days, because I know they're
fostering our relationship. That’s how you nurture your relationships-with
God, with your husband, your children, anyone. Spending time together. So I’m
incredibly thankful for the moments and, better yet, the days we get to slow
down. And just be together.
Happy Weekend!
Hi! My son Brennan is 4 1/2 years old and has Down syndrome. He also has ALL and was diagnosed on July 8th, so we're just a little behind you with his treatment. His chemo is also currently on hold while we wait for his counts to recover. I'll be keeping you all in my thoughts.
ReplyDeleteHi Sharon!
ReplyDeleteI'm so glad you're in touch with us. :) I'll be keeping y'all in my prayers, too! I hope Brennan is feeling really well. Please let me know if you need anything, or just want to talk. Anytime. :)